Your prays and compassion are appreciated beyond words.

From Chris Perry: To all of you, I would like to personally thank you all for the friendships, the research, the tears, the hugs and the love… THANK YOU!!! I would also as that you not give up, push the envelope, test the boundaries and continue towards the cure. It will come!

Monday, May 23, 2011

Please support Niki Perry and family ...


If there is *anyone* in this world who exemplifies passion, energy, faith, and pure determination... it is Niki Perry. Amazing individual, warrior of Brain Tumor battle on all fronts. Fighting her own battle 5+ years now, un-relentless in seeking out new Trials, educating others and giving selflessly. 

One could *not* count on multiple hands & toes the number of lives she has touched.  We do know she has inspired survivors, care takers and by-standers to a point of frenzy, knowing that if not in this lifetime, then our children's life, there WILL BE a better treatment knowledge base for Brain Tumor patients.

Eventually, not soon enough, a CURE to end this horrific cancer will come forth...

Please connect to Niki on Facebook if you want to witness the zest for life, and join her in the march to tackle Brain Cancer!

Recent notes from Niki & Chris Perry .....
24-May-2011: Philadelphia Warrior Angel needs assistance. Niki Perry has fought brain cancer for over 5 years, lost homes, income, use of arm, legs. She has been a leader to the Brain tumor community, sifting knowledge, finding treatments, searching out study groups for us all. 


Recently having multiple seizures, last one cost her speech, ability to walk, one arm doesn't function. Trying to get to proton beam therapy for brain tumor treatment, but needs help. Immediate needs:
  1. wheelchair lift for van
  2. electric wheelchair
  3. assistance with utilities, rent, groceries. 
Husband Chris had to stop working to become full time caregiver.  Join Niki's Army-she needs one to help her through this crisis. 


If anyone has these items, and could let them go free, or really inexpensively it would so be appreciated. Any assistance, help welcome. 


22-May-2011... I'm stuck on the second floor of my apartment, unable to read email or anything on that PC screen without seizing,  on 5-May I was able to begin  `Proton Radiation` treatments. I can't do that without an electric, chair lift which costs approximately 2500 to 3500 U.S. Dollars, installed. I can't write like I used to, but I'm still fighting to get my capabilities back to where they have been so recently. My capabilities have been slipping away for years and years, but I have always been able to write, creatively, then to report on BT research and trials, and always to share my love and support and help. 

A week and a half ago, I suffered a 3 plus hour grand mal seizure that interrupted my daily proton radiation treatments that I had finally started 7 days prior. These treatments seemed to bring on increasingly more frequent and severe seizures, though I had been seizing a lot just prior to their start. On Friday the 13th my husband found me on the tile floor of our bathroom fully engulfed in a grand mal seizure. I was hospitalized and stabilized -- a bit -- and now I am at home with my family that suffers from viruses, shock, and unrelenting stress. 

Unfortunately, like so many Americans, I find myself to be falling through the holes in the safety net. We are late on rent, my husband had to quit working so he can care for me, our utilities are about to be cut off, I can't manage a standard wheel chair in my apartment, because I don't have use of my hands, and I can't walk up and down stairs at all. We need to install a chair lift on the 18 stairs to our apartment, a wheel chair lift in our van, and we need an electric wheel chair for my use -- I can't wheel or steer a manual wheel chair.  

We are good people who just want to LIVE. We always do whatever we can for anyone we can help. If we can be stabilized again, I can resume what I do, which is to love my friends with all my heart, search and search for brain tumor treatments, inform, amuse, tickle and astound all my friends and family.
Please help!
Your tax-free contribution can be made to Medical Assistance Foundation

2 comments:

  1. May God show you grace and mercy through this trying time.

    ReplyDelete
  2. Niki, you are an amazing person, you have shown all of us your courage and inspiration, we love you girlfriend!! God Bless You!!

    ReplyDelete